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***** FINAL NATIONAL PLAN AVAILABLE *****
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Alzheimer's disease and related dementias (ADRD) are debilitating conditions that impair memory, thought processes, and functioning, primarily among older adults. The effects of these diseases can be devastating, both for individuals afflicted with ADRD and for their families. People with ADRD may require significant amounts of health care and intensive long-term services and supports -- including, but not limited to, management of chronic conditions, help taking medications, round-the-clock supervision and care, or assistance with personal care activities, such as eating, bathing, and dressing. In the United States, ADRD affects as many as 5 million people and nearly 40% of the population aged 85 and older. Roughly 13.2 million older Americans are projected to have ADRD by 2050.
The U.S. Department of Health and Human Services (HHS) is working to identify how to prevent ADRD and to address the challenges faced by people with these conditions and their caregivers. The National Institute on Aging leads the National Institutes of Health's efforts in clinical, behavioral and social research into Alzheimer's disease, aimed at finding ways to treat and ultimately prevent the disorder. The Centers for Disease Control and Prevention is working to implement the Healthy Brain Initiative, including assisting with monitoring the public health burden of cognitive impairment and enhancing understanding about how diverse groups perceive cognitive health. The Administration on Aging Alzheimer's Disease Supportive Services Program is helping to create responsive, integrated, and sustainable service delivery systems for people with dementias and their caregivers.
The National Alzheimer's Project Act (NAPA) creates an important opportunity to build upon and leverage HHS programs and other federal efforts to help change the trajectory of ADRD. The law calls for a National Plan for ADRD with input from a public-private Advisory Council on Alzheimer's Research, Care and Services. The Advisory Council will make recommendations to HHS for priority actions to expand, coordinate, and condense programs in order to improve the health outcomes of people with ADRD and reduce the financial burden of these conditions on those with the diseases, their families, and society.
In order to inform the National Plan for ADRD, HHS has partnered with the Department of Veterans Affairs (VA), the National Science Foundation (NSF), and the Department of Defense (DoD) to convene an Interagency Group on Alzheimer's Disease and Related Dementias. The group includes HHS representatives from the Office of the Assistant Secretary for Planning and Evaluation (ASPE), Office of the Assistant Secretary for Health (OASH), National Institute on Aging (NIA), Centers for Medicare and Medicaid Services (CMS), Centers for Disease Control and Prevention (CDC), Administration on Aging (AoA), Health Resources and Services Administration (HRSA), Agency for Healthcare Research and Quality (AHRQ), Substance Abuse and Mental Health Services Administration (SAMHSA), Food and Drug Administration (FDA), Indian Health Service (IHS), and Administration for Children and Families (ACF). The Interagency Group is working to carry out NAPA's charges to coordinate research and services across agencies, accelerate the development of ADRD treatments, improve early diagnosis and coordination of care, reduce ethnic and racial disparities in rates of ADRD, and coordinate with international efforts to fight these conditions. The plan this group is developing will be presented to the Advisory Council for review.
Comments received about the National Plan, Alzheimer's and NAPA are available. New comments, and their attachments, will be added as often as possible. PDF versions of most comments are also available.
- Comment Index [Last Updated April 20, 2012]
- Full HTML Index http://aspe.hhs.gov/daltcp/napa/Comments/PubCom.shtml
The Advisory Council will consist of at least 22 members and will meet quarterly to discuss the efficacy of government programs targeting the needs of individuals and caregivers coping with the consequences of ADRD. This Advisory Council will provide comments on the National Plan for ADRD that will be developed by HHS as they carry out NAPA. The Advisory Council shall review and comment on the draft National Plan and make recommendations for priority actions. On an annual basis, the Advisory Council shall evaluate the implementation of the recommendations through an updated National Plan.
HHS is soliciting nominations for Advisory Council members. Members from outside of the Federal Government will include two patient advocates, two caregivers, two health care providers, two representatives of state health departments, two researchers, and two voluntary health association representatives. Nominations should include the nominee's contact information (current mailing address, e-mail address, and telephone number) and a current curriculum vitae or resume. These were due by June 30, 2011.
The following people have been invited to serve as non-federal Advisory Council members:
Ronald Petersen, Ph.D., M.D. -- Chair (Biography)
Anita Albright, M.A. (Biography)
Laurel Coleman, M.D., FACP (Biography)
Eric Hall (Biography)
David Hoffman, M.Ed. (Biography)
Harry Johns (Biography)
Jennifer Manly (Biography)
Helen Matheny (Biography)
David Hyde Pierce (Biography)
Laura Trejo (Biography)
George Vradenburg (Biography)
Geraldine Woolfolk (Biography)
The following people will represent federal agencies:
Lynda Anderson, PhD (Affiliation)
Regina Benjamin, MD (Affiliation)
James F. Burris, MD (Affiliation)
Bruce Finke, MD (Affiliation)
Richard Hodes, MD (Affiliation)
Russell Katz, MD (Affiliation)
Laura Lawrence, MHSA, MBA, LTCP (Affiliation)
Anna Marsh, PhD (Affiliation)
Donald B. Moulds, PhD (Affiliation)
Anand Parekh, MD, MPH (Affiliation)
William Shrank, MD, MSHS (Affiliation)
William Spector, PhD (Affiliation)
Amber L. Story, PhD (Affiliation)
Colonel Brian K. Unwin (Affiliation)
Joan Weiss, PhD, RN, CRNP (Affiliation)
The last meeting was held on Tuesday, April 17, 2012 in Washington, DC. A representative from HHS presented an overview of the Draft National Plan to Address Alzheimer's Disease. The Advisory Council then discussed and, as appropriate, voted upon recommendations to the Secretary of HHS. The Advisory Council allowed an open public session to address issues or topics that should be addressed in the National Plan.
- Meeting Summary [Available May 2, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4Sum.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4Sum.pdf (15 PDF pages)
- Meeting Agenda [Available April 12, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4Agenda.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4Agenda.pdf (1 PDF pages)
- Overview Slides [Available April 16, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4-Slides1.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4-Slides1.pdf (23 PDF pages)
- Clinical Care Subcommittee Handouts [Available April 16, 2012]
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4-HdOut1.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4-HdOut1.pdf (4 PDF pages)
- Long-Term Service and Subcommittee Handouts [Available April 16, 2012]
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4-HdOut2.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4-HdOut2.pdf (6 PDF pages)
- Research Subcommittee Handouts [Available April 16, 2012]
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4-HdOut3.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4-HdOut3.pdf (6 PDF pages)
The third meeting was a teleconference held on Wednesday, March 14, 2012. The chairs of the three subcommittees (Research, Clinical Care, Long-Term Services and Supports) summarized feedback from their subcommittees on the Draft National Plan to Address Alzheimer's Disease. This feedback was discussed among the full Advisory Council, and an open public session addressed issues or topics that should be addressed in the National Plan. Material from this Advisory Council meeting is available, and listed below.
The second meeting was held on Tuesday, January 17, 2012 and Wednesday, January 18, 2012, in Washington, D.C. The Advisory Council heard an overview of the Draft National Plan to Address Alzheimer's Disease. The chairs of the three subcommittee also summarized the feedback from their subcommittees on the draft plan, and suggested recommendations for discussion. The Advisory Council discussed and voted upon recommendations to the Secretary of HHS on the Draft National Plan. A discussion on how to engage stakeholders outside of the Federal Government in the writing and implementation of the National Plan. Material from this Advisory Council meeting is available, and listed below.
The first meeting was held on Tuesday, September 27, 2011, in Washington, D.C. The Advisory Council heard presentations and provided feedback on inventories of federal activities to address Alzheimer's disease and related dementias, gaps that can be addressed, and opportunities for collaboration. The national plan to address Alzheimer's disease and related dementias was also discussed.Material from this Advisory Council meeting is available, and listed below.
HHS is pleased to announce the release of the National Plan to Address Alzheimer's Disease.
The Plan establishes five ambitious goals to both prevent future cases of Alzheimer's disease and to better meet the needs of the millions of American families currently facing this disease.
- National Plan to Address Alzheimer's Disease [Available May 15, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/NatlPlan.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/NatlPlan.pdf (69 PDF pages)
- PRESS RELEASE: Obama Administration Presents National Plan to Fight Alzheimer’s Disease [Available May 15, 2012]
- Full HTML Version http://www.hhs.gov/news/press/2012pres/05/20120515a.html
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/PR-051512.pdf (2 PDF pages)
Comments received about the National Plan, Alzheimer's and NAPA are available. New comments, and their attachments, will be added as often as possible. PDF versions of most comments are also available.
- Comment Index [Last Updated April 20, 2012]
- Full HTML Index http://aspe.hhs.gov/daltcp/napa/Comments/PubCom.shtml
Recommendations were adopted by unanimous consent by the 11 non-federal members of the Advisory Council at the April 17, 2012 meeting.
- Recommendations of the Public Members of the Advisory Council on Alzheimer's Research, Care, and Services [Available May 15, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/AdvCounRec.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/AdvCounRec.pdf (12 PDF pages)
- National Plan to Address Alzheimer's Disease [Available May 15, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/NatlPlan.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/NatlPlan.pdf (69 PDF pages)
- PRESS RELEASE: Obama Administration Presents National Plan to Fight Alzheimer’s Disease [Available May 15, 2012]
- Full HTML Version http://www.hhs.gov/news/press/2012pres/05/20120515a.html
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/PR-051512.pdf (2 PDF pages)
- Recommendations of the Public Members of the Advisory Council on Alzheimer's Research, Care, and Services [Available May 15, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/AdvCounRec.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/AdvCounRec.pdf (12 PDF pages)
NAPA Public Comments
- Comment Index [Last Updated April 20, 2012]
- Full HTML Index http://aspe.hhs.gov/daltcp/napa/Comments/PubCom.shtml
- 2011 Comments
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/Comments/2011PubCom.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/Comments/2011PubCom.pdf (36 PDF pages)
- 2012 Comments [Last Updated April 20, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/Comments/2012PubCom.shtml
- January 2012 PDF Version http://aspe.hhs.gov/daltcp/napa/Comments/2012PubCom-Jan.pdf (55 PDF pages)
- February 2012 PDF Version http://aspe.hhs.gov/daltcp/napa/Comments/2012PubCom-Feb.pdf (152 PDF pages)
Advisory Council Meeting -- April 17, 2012
- Advisory Council Meeting #4: Meeting Summary [Available May 2, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4Sum.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4Sum.pdf (15 PDF pages)
- Advisory Council Meeting #4: Overview Slides [Available April 16, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4-Slides1.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4-Slides1.pdf (23 PDF pages)
- Advisory Council Meeting #4: Clinical Care Subcommittee Handouts [Available April 16, 2012]
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4-HdOut1.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4-HdOut1.pdf (4 PDF pages)
- Advisory Council Meeting #4: Long-Term Service and Subcommittee Handouts [Available April 16, 2012]
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4-HdOut2.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4-HdOut2.pdf (6 PDF pages)
- Advisory Council Meeting #4: Research Subcommittee Handouts [Available April 16, 2012]
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4-HdOut3.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4-HdOut3.pdf (6 PDF pages)
- Advisory Council Meeting #4: Agenda [Available April 12, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4Agenda.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/041712/Mtg4Agenda.pdf (1 PDF pages)
Advisory Council Meeting -- March 14, 2012
- Advisory Council Meeting #3: Meeting Summary [Available March 30, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/031412/Mtg3Sum.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/031412/Mtg3Sum.pdf (11 PDF pages)
- Advisory Council Meeting #3: Subcommittee Presentation Handouts [Available March 14, 2012]
- Slide Index http://aspe.hhs.gov/daltcp/napa/031412/Mtg3-SubSlides.shtml
- Advisory Council Meeting #3: Meeting Announcement [Available February 29, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/031412/Mtg3.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/031412/Mtg3.pdf (1 PDF pages)
Advisory Council Meeting -- January 17-18, 2012
- Advisory Council Meeting #2: Meeting Summary [Available February 17, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2Sum.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2Sum.pdf (19 PDF pages)
- Advisory Council Meeting #2: Overview Presentation Slides [Available January 27, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2-Slides1.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2-Slides1.pdf (16 PDF pages)
- Advisory Council Meeting #2: Subcommittee Presentation Slides [Available January 27, 2012]
- Slide Index http://aspe.hhs.gov/daltcp/napa/011712/Mtg2-SubSlides.shtml
- Advisory Council Meeting #2: Meeting Agenda [Available January 13, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2Agenda.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2Agenda.pdf (2 PDF pages)
- Advisory Council Meeting #2: Meeting Announcement [Available December 30, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2.pdf (1 PDF pages)
Advisory Council Meeting -- September 27, 2011
- Advisory Council Meeting #1: Meeting Summary [Available November 4, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1Sum.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1Sum.pdf (7 PDF pages)
- Advisory Council Meeting #1: Overview Presentation Slides [Available September 30, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1-Slides1.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1-Slides1.pdf (2 PDF pages)
- Advisory Council Meeting #1: Inventories of Federal Efforts Presentation Slides [Available September 30, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1-Slides2.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1-Slides2.pdf (14 PDF pages)
- Advisory Council Meeting #1: Opportunities and Gaps Presentation Slides [Available September 30, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1-Slides3.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1-Slides3.pdf (15 PDF pages)
- Advisory Council Meeting #1: Meeting Announcement [Available September 9, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1.pdf (1 PDF pages)
- Federal NAPA Advisory Council on Alzheimer's Research, Care, and Services [Available September 20, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/fedmembers.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/fedmembers.pdf (3 PDF pages)
- PRESS RELEASE: Non-Federal Members Named to HHS Advisory Council on Alzheimer's [Available August 23, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/PR-082311.htm
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/PR-082311.pdf (1 PDF page)
- Non-Federal NAPA Advisory Council on Alzheimer's Research, Care, and Services [Available August 23, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/bios.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/bios.pdf (3 PDF pages)
- Federal Register Notice Establishing the Panel and Call for Nominations [Available June 10, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/fedreg.htm
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/fedreg.pdf (1 PDF page)
Home Pages:
Office of
Disability, Aging and Long-Term Care Policy (DALTCP)
Assistant Secretary for Planning and Evaluation
(ASPE)
U.S. Department of Health and Human
Services (HHS)
Last updated: 05/15/2012