Disability

As the United States population ages, a larger proportion of individuals will likely need and use long-term services and supports (LTSS). Much of this support is provided by informal (i.e., unpaid) caregivers. For those that need paid LTSS, most Americans pay out-of-pocket. Some may do so until their personal resources are exhausted, and then rely on the Medicaid safety net.

This report and dataset inventory identifies individual-level measures for conducting patient-centered outcomes research (PCOR) relevant to adults with disabilities, aged 18–64 years.

This is the final report of an AHRQ study to address the operational gap between CFIs and EFIs. This project focused on validating an established CFI using linked claims-EHR databases of multiple large health systems. The project provides a systematic approach that health systems can use to examine the quality of the EHR data and prepare it for the application of EFI measures.

This project focused on validating an established claims-based frailty indexes (CFI) using linked claims-EHR databases of multiple large health systems. Additionally, the project assessed and compared the EHR and claims data of these data sources to ensure sufficient data quality for frailty analysis.

This report describes insights gained from key informant interviews and an ASPE-hosted listening session on short-term opportunities for improving patient-centered outcomes research (PCOR) data infrastructure that addresses the needs of individuals with intellectual and developmental disabilities (ID/DD). Related Products:

This report provides an overview of transition services for clients graduating from Coordinated Specialty Care (CSC). CSC Programs have been successfully implemented across the US, including through support from the Community Mental Health Services Block Grant set aside funds for people with early psychosis.

COVID-19 pandemic’s social restrictions have prompted a surge in the mental health needs of children of all ages. Nationwide 4.3 million children/adolescents have been diagnosed with COVID-19 as of August 2021, and many of them have returned to early childhood and school settings. Schools and early childhood programs have long been essential settings for delivery of mental health services.

For working-age adults with disabilities, consistent access to health insurance may be critical to continuity of care and good health outcomes. We tracked changes in health insurance coverage for this population from 2010-2018.

Richard W. Johnson and Melissa M. Favreault Urban Institute January 2021 Link to Printer Friendly Version in PDF Format (50 PDF pages)

Most Older Adults Are Likely to Need and Use Long-Term Services and Supports ASPE ISSUE BRIEF Richard W. Johnson and Melissa M. Favreault Urban Institute Judith Dey, William Marton, and Lauren Anderson