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Data

ASPE uses and produces data as key components of its work. ASPE studies and assesses data and how it is captured, managed, analyzed and protected, including the interplay of the sources, systems, standards for data that support policy, practice and research. 

ASPE also co-chairs the HHS Data Council, which is the principal internal advisory body to the Secretary on health and human services data policy. The Council coordinates data policy activities in HHS, including the development and implementation of an HHS data strategy, and conducts research to improve long-term collection and use of HHS data. 

ASPE’s work involves many types of data produced by HHS and other governmental programs and other partners. For example: 

  • Through its Foundations for Evidence-Based Policies Act of 2018 (“Evidence Act”) and Data Council responsibilities, ASPE leads HHS efforts to improve the quality and accessibility of its data assets.
  • Through its investments under the aegis of the Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS-PCORTF), ASPE supports interoperability through such products as linked datasets involving mortality data, HL7 implementation guides in support of FHIR for research use of electronic health records, claims and other data, and natural language processing approaches.
  • Through the use of ASPE-developed supplemental data tables, ASPE has developed issue brief series examining options before and after the passage of the American Rescue Plan Act of 2021 (ARP).
  • Through its issue briefs such as this brief on Medicare Telehealth utilization trends, ASPE provides unique and timely data and analyses on important policy issues.
  • Pursuant to the Social Security Act, ASPE annually calculates and publishes the Federal Medical Assistance Percentage (FMAP), enhanced Federal Medicaid Assistance Percentage (e-FMAP), and disaster-recovery FMAP for all states, the District of Columbia, and territories. The FMAP is used to determine federal funding for Medicaid/CHIP, Temporary Assistance for Needy Families (TANF) Contingency Funds, and other public programs. The FY 2022 FMAP notice was published in the Federal Register on November 30, 2020.

Reports

Displaying 11 - 20 of 610. 10 per page. Page 2.

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Report, Research Brief

Reconnecting Youth: Compendium of Programs

Compendium of Programs: Research Report and Overview The Reconnecting Youth compendium of programs provides an overview of 78 programs and the practices they employ to support young people who experience disconnection from school and work during their transition to adulthood.
Report

Health Information Technology Adoption and Utilization in Long-Term and Post-Acute Care Settings

This paper provides an overview of Health Information Technology (HIT) adoption and utilization in long-term and post-acute care (LTPAC) settings. This study found that LTPAC have adopted electronic health records (EHRs) to support clinical and business needs. Interoperable exchange of health information however is not routine or widely used.
Research Brief

A Historical View of The Demographic and Employment Characteristics of Families Receiving Child Care Subsidies From 2009-2013

The child care subsidy program provides critical support to families to support parental labor force participation as well as child development. This study provides a historical view of the socioeconomic and demographic characteristics of parents who received subsidies over the 2009-2013 period.
ASPE Issue Brief

Advancing Research on Intersections of Child Welfare and Medicaid Using Linked Data from the CCOULD Project

Increasing availability of linked child welfare and Medicaid data can advance research on the intersections of child welfare and Medicaid. The project, Child and Caregiver Outcomes Using Linked Data (CCOULD), developed a research-use dataset combining child welfare records and Medicaid claims for children and families involved in child welfare systems in Florida and Kentucky.
ASPE Issue Brief

Project Update: Child Welfare and Health Infrastructure for Linking and Data Analysis of Resources, Effectiveness, and Needs (CHILDREN) Initiative

This brief describes progress in the Child Welfare and Health Infrastructure for Linking and Data Analysis of Resources, Effectiveness, and Needs (CHILDREN) Initiative, which is entering its second year. At this time, four jurisdictions have been selected for participation in the CHILDREN Initiative and are engaging in feasibility studies to determine readiness for linking data.
Database, Dataset

State and Local Estimates of the Uninsured Population in the U.S. Using the Census Bureau’s 2022 American Community Survey

State and Local Estimates of the Uninsured Population in the U.S. Using the Census Bureau’s 2022 American Community SurveyMethodological Description
Research Brief

Trends in Ownership Structures of U.S. Nursing Homes and the Relationship with Facility Traits and Quality of Care (2013-2022)

Stakeholders, researchers, and policymakers have identified varying nursing home ownership structures and ownership transactions as potentially influencing the quality of care delivered to vulnerable residents.
Research Brief

Behavioral Health Diagnoses and Treatment Services for Children Involved with the Child Welfare System

This research brief uses claims data from the Medicaid and Children's Health Insurance Programs to examine the behavioral health diagnoses and treatment services received by children and youth involved with the child welfare system in 2019.
Report

State All Payer Claims Databases: Identifying Challenges and Opportunities for Conducting Patient-Centered Outcomes Research and Multi-State Studies

This report is the third in a series of reports commissioned by the Office of the Assistant Secretary for Planning and Evaluation (ASPE) from the RAND Corporation addressing state all payer claims databases (APCDs). APCDs include medical, pharmacy, and dental claims, as well as enrollment and provider files collected from private and public payers by states, usually as part of a State mandate.
Policy Brief

Refugee and Asylee Data on the Utilization of Medicaid

This brief describes a joint project of the ASPE and the Office of Refugee Resettlement in the Administration for Children and Families to enhance the data infrastructure of agencies managing refugees and Medicaid services. This project is funded by the Patient-Centered Outcomes Research Trust Fund.