This environmental scan, conducted by Mathematica and funded by ASPE, examines the types of direct and direct costs to patients associated with clinical trial participation. It also explores the effect of COVID-19 on costs to patients, including cost implications of clinical trial innovations widely implemented during COVID-19 and other efforts to increase diversity of clinical trials.
Health & Health Care
ASPE produces health policy research with a focus on equity, coverage, and access. Find resources related to a broad range of topics, including the uninsured population, vaccine hesitancy, Medicaid/CHIP, Medicare, the federal marketplace (HealthCare.gov), telehealth, health care delivery, underserved areas, delivery system transformation, health outcomes, and social determinants of health.
Noteworthy Resources and Reports
Vaccine Hesitancy for COVID-19: State, County, and Local Estimates
To support state and local communication and outreach efforts, ASPE developed state, county, and sub-state level predictions of hesitancy rates using the most recently available federal survey data. Explore the interactive map and other resources.
Topic Areas
Reports
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Advanced SearchASPE Issue Brief, Report
Transformation of the Clinical Trial Enterprise: Lessons Learned from the COVID-19 Pandemic
In 2023, ASPE launched a research project to understand the impacts of COVID-19 on the clinical trial enterprise and identify key lessons learned.
Fact Sheet
State Fact Sheets: Impacts of the IRA and ACA on Lowering Health Care Costs, 2024
These Fact Sheets highlight health care cost savings achieved under the Inflation Reduction Act (IRA) and the Affordable Care Act (ACA) for each of the fifty states and the District of Columbia. Enrollee savings on Medicare Part D out-of-pocket costs, insulin, vaccines, and Marketplace premiums are presented.
ASPE Data Point
Nurse Staffing Estimates in US Nursing Homes, May 2024
In April 2024, CMS issued the Minimum Staffing Standards for Long-Term Care Facilities and Medicaid Institutional Payment Transparency Reporting final rule which established new minimum nurse staffing requirements for nursing homes by nurse type.
ASPE Issue Brief
Medicaid Home and Community-Based Services Section 1915(c) Waiver Policy Flexibilities During the COVID-19 Public Health Emergency: State Agency, Provider, and Consumer Experiences Issue Brief
States may use Appendix K to modify their existing Medicaid home and community-based services (HCBS) 1915(c) waiver programs during emergency situations. During the COVID-19 public health emergency, states used Appendix K to make temporary changes to access and eligibility, payment, services, and other aspects of their waiver programs.
Research Brief
Changes in Ownership of Skilled Nursing Facilities from 2016 to 2021: Variations by Size, Occupancy Rate, Penalty Amount, and Type of Ownership
Stakeholders, researchers, and policymakers have identified varying nursing home ownership structures and ownership transactions as potentially influencing the quality of care delivered to vulnerable residents.
ASPE Issue Brief
Health Insurance Coverage and Access to Care among American Indians and Alaska Natives: Recent Trends and Key Challenges
The uninsured rate among non-elderly American Indians and Alaska Natives (AI/ANs) decreased from 32.4 percent in 2010 to 19.9 percent in 2022 – however, the AI/AN population continues to have the highest uninsured rate compared to other racial and ethnic populations.
ASPE Issue Brief
Health Insurance Coverage and Access to Care Among Asian Americans, Native Hawaiians, and Pacific Islanders: Recent Trends and Key Challenges
Asian Americans, Native Hawaiians, and Pacific Islanders (AANHPIs) experienced larger relative gains in health insurance coverage than any other racial or ethnic group in the United States since the Affordable Care Act was enacted in 2010.
ASPE Issue Brief
Health Insurance Coverage and Access to Care Among Latino Americans: Recent Trends and Key Challenges
The uninsured rate for nonelderly Latinos decreased from 32.7 percent to 18.0 percent, from 2010 to 2022, however, Latinos are more than twice as likely to be uninsured as non-Latino Whites.
ASPE Issue Brief
Improving Access to Affordable and Equitable Health Coverage: A Review from 2010 to 2024
Recent legislative and administrative policy initiatives have built on the Affordable Care Act’s (ACA) expansion of health insurance coverage and improvements in access to and utilization of health care services.