Data Sharing & Interoperability

This 2024 vignette provides examples of how a range of OS-PCORTF cross-agency projects are working to improve maternal health by 1)Reducing Preventable Pregnancy-Related Deaths and Improving Maternity Care 2) Studying Substance Use Treatment Outcomes for Pregnant Women 3) Representing all American Mothers and Children in Research Data

This report is to serve as a data source guide that helps policymakers and researchers understand the current data infrastructure landscape for SCD-focused health outcomes research. Specifically, the goals are to identify existing SCD data sources and data dashboards as well as key considerations to enhance data collection and use.

This Issue Brief explores opportunities that technology-enabled care (TEC) offers to help meet patient and provider needs for high-valued coordinated care to improve health outcomes. It explores literature surrounding existing available TEC options, as well as economic and payment issues that influence whether this is taken up.

This brief describes how enhancing linked data infrastructure across health and human services programs can improve efficiency, increase transparency through strengthening outcomes research, and empower patients and families to make more informed choices.

This brief examines the timing of Medicaid and Children’s Health Insurance Plan (CHIP) enrollment relative to timing of engagement with child welfare services for children in Florida and Kentucky. The analysis covers children involved in child welfare systems from 2017-2021.

Linking data across public systems is beneficial for a multitude of reasons including care coordination, improving research on populations engaged with multiple public services, and improving program integrity.

This two-pager describes several child welfare and Medicaid data linking projects and lessons learned from those projects. For example, the brief highlights key lessons such as the value in providing states with support in navigating data governance and in strengthening and harmonizing data infrastructure on child welfare service.

This paper provides an overview of Health Information Technology (HIT) adoption and utilization in long-term and post-acute care (LTPAC) settings. This study found that LTPAC have adopted electronic health records (EHRs) to support clinical and business needs. Interoperable exchange of health information however is not routine or widely used.

This report is the third in a series of reports commissioned by the Office of the Assistant Secretary for Planning and Evaluation (ASPE) from the RAND Corporation addressing state all payer claims databases (APCDs). APCDs include medical, pharmacy, and dental claims, as well as enrollment and provider files collected from private and public payers by states, usually as part of a State mandate.