Data Sources & Measurement

The team conducted an environmental scan to explore the patient-reported outcome measures (PROMs) that could be used in new and emerging human immunodeficiency virus (HIV) therapies. In the context of HIV clinical trials, PROMs may be used as clinical outcome assessments (COAs) to characterize how patients feel and function and to inform regulatory evaluations.

The team conducted an environmental scan to explore the patient-reported outcome measures (PROMs) that could be used in new and emerging sickle cell disease (SCD) therapies.

The United States (U.S.) faces urgent health challenges, including poor maternal and childhood health outcomes, childhood obesity, opioid use disorder, cancer, and chronic conditions, which require personalized care tailored to each patient’s unique circumstances.

The U.S. behavioral health (BH) workforce faces significant shortages and distribution disparities, hindering access to quality care and worsening health outcomes. A comprehensive, centralized database of BH providers is vital for advancing patient-centered outcomes research (PCOR), comparative effectiveness research (CER), and evidence-based policymaking.

Key Findings:

This brief describes differences in engagement in child support for custodial parents living in rural and nonrural areas. Key findings are below.Key Points:

This report and accompanying discussion by ASPE and NORC highlights the claims data limitations identified during the COVID-19 Public Health Emergency Health (PHE) and provides considerations to address these limitations. The report identifies that limitations related to claims data were existing issues, exacerbated by, but not unique to, the COVID-19 PHE.

This report presents the set of guiding principles for linking state Medicaid data with birth certificates that was developed by state and national experts and leaders. These guiding principles can be implemented to create a multistate linked database that researchers would be able to access and use for research on maternal health, including patient-centered outcomes research (PCOR).

Improving health equity in the United States is a priority for the Biden-Harris Administration in order to address longstanding disparities in health outcomes. Health inequities can be conceptualized and measured as drivers of differences in health outcomes.

The Early Childhood Systems Collective Impact Project (ECS Collective Impact Project) will help to re-envision a truly coordinated approach to program implementation designed to advance early childhood and family well-being outcomes across federal programs that support expectant parents, children ages 0 to 8, and their families.